I never dreamed there would be a time when playing the piano would no longer be a huge part of my life. The time is here. Essential tremors make it very difficult for me to play, especially when it involves people watching and listening.
Nervousness has always been a struggle, something to overcome every time I sat down to play. Essential tremors has nothing to do with nervousness, but any kind of adrenalin, as in playing for a crowd, makes the tremors much worse.
I sought treatment for many years, with little effect. Two neurologists prescribed medications that carry possible seizures as a side effect. Thankfully, I never suffered a seizure. The medication, however, did not bring lasting or significant results and I wasn’t willing to take more massive amounts. I decided, aided by consultation with my primary care physician, it was time to quit.
It has now been five years since I stopped taking medications. Although I can still type with no problem, I have great difficulty doing other simple things. Sometimes just putting a key in a lock is a real challenge. Model Railroading is my hobby and detail work is very important. I have had to find ways to accomplish tasks I want to complete on my railroad layout.
I flew radio-controlled model airplanes for several years and loved it. I can’t do it any longer because of inability to control my fingers on the radio posts. It’s so frustrating to have to give up flying! I’m not willing to risk destroying my planes with stubbornness.
It’s really kind of a crazy sensation. Sometimes my individual fingers shake, as in trying to fly a RC airplane. At other times it’s my entire hand shaking. Sometimes my arm.
I taught myself how to print with my right hand so I could continue to function. Although not as bad as my left, my right hand is trying to catch up.
I spent many years playing the piano, most of the time playing for others who were singing. It’s a real disappointment not being able to do it anymore. I took it for granted for so long, it’s painful not to have it.
I’ve read lots of information about various treatments for Essential Tremors. I went to a university hospital for a screening for deep-brain stimulation but was told I was not a candidate. There are other possibilities I have just begun to investigate. We’ll see.
For now, I’ll play my digital piano with my headphones on so no one can hear what’s actually happening. Sometimes it still sounds pretty good. With a little reverb it sounds like I’m playing in a huge auditorium again. Lots of great memories. I imagine the applause and it makes me feel good. I’m thankful for many good years sitting at the piano.